Patient Privacy Rights: Homepage

Get a Fresh Start on 2008 with the Patient Privacy Toolkit. Visit the Patient Privacy Toolkit and learn how to control your private health records from the ground up and fight for your privacy from the top down.

Legislation

Patient Privacy Rights urges Congress to support Reps. Markey & Emanuel's 'TRUST Act', HR 5442. Ask your Representative to sign on as a co-sponsor of this bill securing our health privacy rights here.

Security breach at NIH results in 2,500 patients' private health data being stolen. NYT editorial pinpoints the problem; "This disturbing incident underscores the need for a strong federal law to protect medical privacy...". Read More.

IOM Study on Health Research and Privacy led by Alan Westin. The vast majority of Americans support research but ONLY when they give informed consent. Click here for a summary of the study.

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